Tuesday, 2 April 2013

The Health Activist Writer’s Month Challenge: Day 2

Yesterday was the first day of the WEGO Health Activist Writer's Month Challenge, which of course I missed due to ill health! Oh well, better late than never. Today's prompt asks you to introduce yourself and your illness/condition. I have already talked a bit about becoming ill in my first post ( here ), but not really described what it is like to live with Fibromyalgia.
Pretty much everybody has felt physical pain at some time in their life. But usually it goes away. It's meant as a warning that something is wrong and needs to be mended, and when that wrong is mended the warning is no longer needed. But what if that warning system breaks? What if it doesn't realise that the injury or illness has been mended? What if it doesn't stop the warning pain? That's Fibromyalgia.
Or at least one of the theories of Fibro, because there are a few, but the one that makes the most sense to me. The fact is medical science does not know the cause of Fibro. Nor do they know how to cure it. A lot of doctors still believe that it is psychological. Quite how they come to that conclusion when presented with someone who is clearly in agony, along with all the other symptoms, baffles me. Fibro and ME/CFS are often linked to depression and so given a psychological cause. To this I say are you shitting me?!!! I am in pain all day every day, and you wonder why I am depressed???!!!!!
Now I have been lucky and have had doctors who have understood the condition, as much as it can be, and have tried to help me deal with it. Not everybody who has Fibro has been so lucky. Thankfully it does seem to be getting better now in terms of greater awareness and research. Doctors seem much more clued up about Fibro than they did even 5 years ago when I was diagnosed. I think this is because of the spreading of information by people who have Fibro and other chronic illnesses on the Internet. We are becoming Activists, actively researching and sharing our experience of chronic illness. Which is exactly what this challenge is about.
Today's prompt also suggests sharing other blog posts that you think will help the newly diagnosed. As I have only just started blogging I am going to link to a couple of other blogs that I think are helpful.

  1. Chronically Crafty  has a very good post on getting a diagnosis for Fibro. She has other great posts on Fibro too so check it out.
  2. It's not all Me, Me, Me's post on ME/CFS gives a lot of info on the condition and links to some good websites.
  3. Another new Fibro blogger The Retired Bridgeburner has some very good posts about her experience of having Fibro.
  4. And finally The Spoon Theory by Christine Miserandino. A great way of explaining to other people how chronic illness affects us.
If you are new to Fibro and/or ME/CFS I hope this post and the others I have linked to help you.

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